Saturday, January 25, 2014

HAPPY BIRTHDAY

Tomorrow is their third birthday.  And I'm not really sure how that can be possible.  Why is it that time can seem like such a blur.  I look at the pictures on my phone, my computer, my walls of the past three years and I have a hard time remembering.  Certainly I can recall that event.  And what they wore and where we were....but for those singular moments that occupied each and every day of their lives?  No.  I don't remember.  I will stare at a single picture of them in their babyhood trying desperately to remember just what their chubby little hands felt like against my skin.  How their belly laughs must have sounded.  What is was like to pick them up out of the bathtub, all squirming and squeaky delight.  How the peach fuzz on their heads slowly turned into a mess of blond spikes softer than any down pillow.  What it felt like to hold them both, one in each arm, nestled snugly on my chest.  I have a hard time remembering.  And it makes me sad. But not devastated. And maybe that is the heart's way of persevering.  That the memories aren't so fresh that one can't overcome the lingering comfort of the past.  That saying goodbye to the past allows one to greet the future with vigor.  Maybe it's all part of His master plan.  Even so...it's a good thing for cameras;)
I have been struggling with three.  It just sounds so old.  At two, they are still babies.  But three?  Three year olds are potty trained.  Preschool age.  Sleep in big boy beds.  Switch to booster seats.  There is no remnant of babyhood in the third year.  They will be boys.  Little boys.  Not babies ever again.
Yet I am looking forward to three.  Because year two has been a challenge.  I love being a momma.  I am blessed beyond measure to get to parent these littles.  But the past year has had it moments.  Mainly discipline.  It sucks.  The hardest part of parenting thus far for me has been discipline.  It has brought me to my knees.  I have no idea whether I'm doing the right thing or scarring their little psyches.  How can I tell them not to hit when I turn around and spank them for it??  How is putting them in time out going to make them want to eat their vegetables??  When did bribery become my best friend regarding maintaining control of them in public??  There have been days when I've been exhausted, literally at the end of my rope.  Tearful, overwhelmed, defeated.  Days when I had to call my neighbor and ask her for help.  Please come take a baby.  I'm done.  I.CAN'T.DO.IT.ANYMORE.
And like the angel that she is, like the angels that have surrounded me ever since these boys came down from heaven, grace answers.
Motherhood is by far the hardest thing I have ever done.  EVER.  It is a roller coaster of emotion.  Ranging from doubt to certainty and from despair to triumph.  I have never in my life loved with such reckless abandon.  And it is terrifying and gratifying all in the same moment.  Since becoming a momma I have become a hypochondriac.  Really.  Every ailment that I have I am convinced that it is something horrible.  Terminal.  And it's not that I am afraid to die.  I am a Christian.  I know that heaven awaits. It's just that I don't want to leave them.  Even though the days can be frustrating, I don't want to miss a thing.  I've waited my whole life for this privilege.  Having a child is one thing.  Mothering a child is something completely different.  Being a momma is the greatest honor of my life.  Here's to the next year!!



Beckett: you are a pistol.  You are determined and stubborn.  You are deliberate and methodical.  You do everything with a purpose.  We always call you our "little engineer."  Your vocabulary is immense.  You know all your colors and letters. Your memory is phenomenal.  You are a great eater.  You love any type of fruit.  And are willing to try new things.  You are a little OCD, (just like your momma).  If something is out of order, or if somebody messes up what you have created, you lose your cool.  Your patience is lacking.  You want what you want when you want it.  And most of the time, I give you your way;0  You are fascinated with airplanes, helicopters, and school buses.  Currently you are in love with Toy Story, Elmo, and Caillou.  You love guitars.  And I love how you say guitar, "bitar."  You have no interest in potty training.  You go to bed beautifully but then once in bed, you fight sleep like a champion.  You will stay awake in your bed for hours.  Talking, singing, irritating your brother.  You are definitely a leader. You are busy.  From the moment your eyes open, you are moving.  Yet you still want to be sweet.  You will come up to me and say, "just love me."  You are both defiant and a pleaser.  You are sensitive and get your feelings hurt easily.  You have the craziest sliest grin I've ever seen.  You have a gap between your two top teeth that I just love.  Right now if you need to get something you say, "I be right back," and you put your hand up as if to stop me from following you.  Because clearly whatever you are going to get is not going to be momma approved;)  But I'll wait for you to come back....forever and ever.


Blake: you are a little love.  You are sweet and patient.  You can be painfully shy at times and then absolutely hilarious at others.  You know that you are funny and try hard to make us laugh.  Mostly by dancing.  You have more rhythm at age two than your momma has now.  You love to hang out with other kids, especially Claire, and will quickly sit down to play with them.  You never ever complain when you have to do a "treatment" for asthma.  I think you know that it makes you feel better.  Actually some of my favorite times with you are in the middle of the night, just the two of us and the nebulizer.  You are still kind of asleep and you just let me hold you.  You know most of your letters and colors.  Your vocabulary is finally taking off...but we still have a hard time understanding all of it.  Just recently you have started stuttering.  The therapist thinks it might be because you have so much to finally say but you just can't get it all out.  So we will see.  I love how you say things though.  "I no do it."  "I do myself."  "I no find it." You absolutely love animals.  Your love for Zoey warms my heart.  I'm sure you would have loved Baylor too.  You love all sports and especially going to the UofL basketball games to watch Luke play.  When I put on your tennis shoes in the morning, you ask me if they are your "Luke" shoes.  You are not a good eater.  AT ALL. No fruits unless it's in a pouch and no vegetables.  We have a long way to go on that.  You have no interest in the potty either.  You love love your bath.  You stay in the tub long after all the water has drained. You are a great sleeper and love taking naps and going to sleep.  You are starting to become a little bit more mischievous and are certainly testing your independence. If I tell you no, you will look at me and do what i asked you not to do again, but in a much softer way;) You love love to cuddle.  And I love that you still put your woobie, (lovie) on your head.  Even your brother does that now.  You make me laugh Blake.  And that makes this momma very happy.

Tuesday, January 7, 2014

december 2013

on ITP

It's late.  Almost midnight.  We just got back from our vacation earlier today.  The day has flown by.  Lots of washing of clothes, putting away of toys from grandpa and grandma, taking down the Christmas tree, taking the suitcases back in the attic, and tending to two littles that are overtired and yet way too energetic.  I am exhausted.  But I am not complaining.  Exactly one year ago today, I got my baby out of the bathtub, noticed a rash on his arms and elbows.  I hollered to Chris.  "Can you come look at this?  It looks weird, not good."  Maybe only a few minutes passed, I don't really remember.  All of it is a blur.  Chris grabbed Blake out of my arms and started screaming.  Not at me, simply at the situation.  I do know I called my sister.  And my mom.  Not sure what I was going to tell them, because I didn't know anything.  Chris called James.  James and Carrie came over.  They got to our so quickly.  Chris was holding Blake.  I kept thinking that it was fine.  That they were going to tell us not to worry.  They didn't.  They told us that we needed to get the office.  Blake needed a CBC.  Their faces were concerned.  They didn't make eye contact with us.  At this point I was crying.  I called my mom again.  She came over to watch Beckett.  Chris was still screaming.  He kicked the dog, (which of course he regrets now). My heart was beating so fast.  My mouth was so dry.  I felt like I was going to vomit.  We drove to Chris' office.  Maybe we flew there.  We got there way to quickly and yet it seemed to take forever.  Chris' nurse met us there.  She stuck Blake's finger. It wouldn't stop bleeding.  She put the blood in the machine.  We waited.  Blake's finger wouldn't stop bleeding.  I kept staring at it.  The way she was holding his hand so high above his head.  I barely noticed Chris falling to the floor.  Sinking down.  His color drained.  I remember somebody screaming.  It was only later when I realized that it was me.  I was screaming.  Chris wasn't talking to me.  He was on the phone to the hospital.  Talking and talking to a hematologist.  I sat there beside him.  Pleading with him to tell me something.  Blake was still with Shannon.  Still bleeding.  I kept hearing snippets of the conversation.  Admission. ITP. Leukemia. Brain bleed.  I just sat there.  Frozen in the chair.  Freezing cold and burning hot.  Chris hung up the phone.  "Blake needs to go the hospital.  Now."  I called my mom.  We drove home.  We packed our bags.  I took a shower.  Crazy, huh?  But I wanted to be clean, to be fresh when I received a diagnosis.  I remember kissing Beckett goodbye.  Looking down at him in his crib and wondering what this was going to do to his life.  Blake was the sick one, but Beckett would be the forgotten one.  And I cried.  We got to the hospital and were a direct admit.   No waiting.  They were waiting for us.  An IV was started.  People were in and out.  Explaining different scenarios.  Either ITP (idiopathic thrombocytopenia) or Leukemia.  Blake needed a medication called WinRho.  If it worked and his platelets responded, then he would receive the diagnosis of ITP.  If not, then chemotherapy was in our future.  We had to wait eight hours.  Eight long hours to determine if his body accepted the WinRho.  That drug made him violently ill.  Fever, chills, vomiting.  I couldn't hold him.  So I climbed into the crib and cradled him with my body.  Willing his platelets to rise.  I did a lot of bargaining that night.  With God.  His counts were taken about 6am.  We waited for the lab to read them.  His counts went from 3000 to 17000.  A positive response.  A diagnosis of ITP.  And that began our journey.
This past year has been....so hard.  I can't really put it into words.   One year from the date of diagnosis it all seems so distant.  Because I have never dealt with it.  I didn't take pictures to document his transfusions.  It was just too damn hard.  It feels as if my heart has had an armor of caution around it this past year.  I love Blake.  But God forgive me, it terrified me to love him.  To get to close.  For fear of losing him.  Can you imagine looking at your little, noticing a bruise and wondering if he is bleeding inside his brain??  Can you imagine trying to tell your toddler not to go up the steps, lest he fall??  That he can't get sick because it could put him in a ITP crisis?  A little cold could f#!K it all up??  Having to go for a CT scan every time he falls?  Having to go to work to take care of other sick babies when all you want is to take care of your sick little?  Not really caring at all about anyone else.  Lining up childcare for one son while the other son is getting a transfusion.  Becoming that family that is on the prayer list at church.  Staying awake until the early hours of the morning researching ITP.  Watching youTube videos of children with ITP...dying??  This past year has sucked at times.  Yet out of the woodwork came angels.  That live right here on earth.  My family has witnessed so many deliberate acts of kindness this past year.  So much grace.  Cause here's the thing.  Taken from Mayo Clinic..."serious and possible fatal complications due to extremely low counts (<5 hemorrhage...="" include="" intracerebral="" or="" subarachnoid="" u="" ul="">
Blake's platelets were 3,000.  He never had a bleed.  He is well.  He is a happy toddler.  Loved by so many.  But recognized as a gift, a blessing by his momma every day.  I don't know what I would have done if something had happened to my son.  I hope I will never have to know.  I hope that he continues to thrive.  I hope I am able to stand beside him for as long as I live.  Cheering him on.  And that he will always know that his strength carried me.  When I should have been carrying him, He carried us all.  I will acknowledge this.  That there is no pain as that of a mother watching her child suffer.  And yet, how much sweeter it is when that suffering ends.
I am rambling.  So much to say.  And yet there is nothing left at all.  Tomorrow we go in for a final CBC.  I am anticipating a remission diagnosis.  But if, if that is not the case tomorrow, I will stand tall.  I will hold my son.  I will rip the armor off my heart and love him fiercely.  Because to know Blake is to love him.  And I would do it all over again.  And again.  And again.


BEAUTIFUL THINGS
GUNGOR

all this pain
i wonder if I'll ever find my way?
I wonder if my life could really change at all?
all this earth, could all that is lost ever be found?
could a garden come out of this ground at all?

you make beautiful things
you make beautiful things out of the dust
 you make beautiful things
you make beautiful things out of us

all around
hope is springing up from this old ground
out of chaos life is being found in you

you make beautiful things
you make beautiful things out of the dust
you make beautiful things
you make beautiful things out of us

you make me new
you are making me new
you make me new
you are making me new
making me new

you make beautiful things
you make me new
you make beautiful things out of us
you are making me new, making me new

you make beautiful things
you make me new
you make beautiful things out of the dust
you are making me new, making me new

you make beautiful things
you make beautiful things out of the dust