Thursday, July 9, 2015
Wednesday, June 24, 2015
Friday, May 29, 2015
Wednesday, May 13, 2015
why I'm not worried about potty training
The fact that my almost four and a half year old is not potty trained does not bother me. At all. Blake will do things in his own time. And honestly, the boy deserves a break. Tonight was a bad night for him. He had a vasomotor instability episode. He was just diagnosed with this in February. It is a condition where there is poor communication between the blood vessels and the autonomic nervous system. Basically what happens is Blake will get pale very quickly, then he will tell me that his head hurts, then he will puke. A lot. 😔 And sometimes pass out. So....according to the cardiologist we have to keep him "sloshy hydrated." Even though I know what the episodes are now, I still hate it for him. It's just one more thing that he has to deal with. Blake's medical history is.....complicated.
Less than eight hours after birth he was diagnosed with meningitis. As he got older he was diagnosed with failure to thrive. Then with gross developmental delays. He has had physical therapy, occupational therapy, speech therapy, ( which he is still in) and a developmental interventionalist. He has been diagnosed with mild hearing loss in his left ear and is followed by Heuser Hearing Institute. He has a PFO, (patent foramen ovale) that requires biyearly visits to the cardiologist and clearance before any surgery. He has had a frenulectomy for being tongue tied. He has had lacrimal duct stenosis where the ophthalmologist took a balloon catheter to both tear ducts to widen the opening. He has had a tonsillectomy and adenoidectomy. He has had ear tubes times two. He has had bullous myringitis, a painful condition where a fluid filled vesicle appears on the eardrum requiring it to be drained. He is an asthmatic. When he has an attack he requires breathing treatments every.single.hour. And steroids. And that's just to keep him out of the hospital. As a result of all the albuterol he is on, he has had four cavities, (I am the daughter of a dentist, we brush their teeth) and had to have a pulpectomy. He has allergies to most everything outside. He was diagnosed with synovitis in his leg after he developed a limp at the beginning of this year. Thankfully that did not have to be drained. Oh and right before his second birthday he was diagnosed with ITP, idiopathic thrombocytopenia. We thought we going to lose him. His platelet count was 3,000. He's got a lot going on. And he is ONLY four years old. So I really don't give a damn if he's not potty trained. I'm just blessed that he is mine....and on this side of heaven.
Less than eight hours after birth he was diagnosed with meningitis. As he got older he was diagnosed with failure to thrive. Then with gross developmental delays. He has had physical therapy, occupational therapy, speech therapy, ( which he is still in) and a developmental interventionalist. He has been diagnosed with mild hearing loss in his left ear and is followed by Heuser Hearing Institute. He has a PFO, (patent foramen ovale) that requires biyearly visits to the cardiologist and clearance before any surgery. He has had a frenulectomy for being tongue tied. He has had lacrimal duct stenosis where the ophthalmologist took a balloon catheter to both tear ducts to widen the opening. He has had a tonsillectomy and adenoidectomy. He has had ear tubes times two. He has had bullous myringitis, a painful condition where a fluid filled vesicle appears on the eardrum requiring it to be drained. He is an asthmatic. When he has an attack he requires breathing treatments every.single.hour. And steroids. And that's just to keep him out of the hospital. As a result of all the albuterol he is on, he has had four cavities, (I am the daughter of a dentist, we brush their teeth) and had to have a pulpectomy. He has allergies to most everything outside. He was diagnosed with synovitis in his leg after he developed a limp at the beginning of this year. Thankfully that did not have to be drained. Oh and right before his second birthday he was diagnosed with ITP, idiopathic thrombocytopenia. We thought we going to lose him. His platelet count was 3,000. He's got a lot going on. And he is ONLY four years old. So I really don't give a damn if he's not potty trained. I'm just blessed that he is mine....and on this side of heaven.
Wednesday, April 8, 2015
Tuesday, April 7, 2015
Tuesday, March 17, 2015
6 years gone
It's been six whole years since you left us, and I still miss you as much today as I did then. I guess that means you did a good job. You loved me so well. So very well. I can't help but wonder what life would be like had you been able to stay. What you would think of the boys. Certainly you would love them. But I think be jealous of them too. Because you were my baby. And you didn't like to share. But then again, because you loved me so well, I believe that you would have loved them, fiercely. I still wonder why you had to go. Because losing you was so very hard. It is still hard. You taught me more than any person ever could. What you gave to me in 12 years will take others a lifetime. I think you must have known your life was shorter than mine and so you lived so vibrantly. And when your work was done, when you had taught me all there was to know....you left.
Today is a beautiful day. You would have loved it. I can imagine you at the park, running. You loved to run. But now you are up in heaven. And I imagine that Harper lies beside you. And she buries her face into your fur. And you watch her. And you watch over us. And this life goes on.
Today is a beautiful day. You would have loved it. I can imagine you at the park, running. You loved to run. But now you are up in heaven. And I imagine that Harper lies beside you. And she buries her face into your fur. And you watch her. And you watch over us. And this life goes on.
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